Patient and Public Involvement
In recent years, there has been growing recognition of the value of involving patients as active partners in health research. When patients are engaged not merely as study participants but as collaborators, the research becomes more attuned to the real-world challenges they face in their daily lives. This approach ensures that the knowledge we generate is both meaningful and applicable.
Throughout the MOBILIZE project, eight patient partners and family members have been integral members of the research team. They have contributed actively across all phases of the project—from planning and execution to dissemination and now implementation—helping to ensure that the research remains grounded in the issues that matter most from a patient perspective.
We have worked purposefully and thoughtfully with methods for involvement, and one key lesson has been that these methods must be continuously negotiated and adapted. There is no gold standard, and things rarely go exactly as planned. We’ve made mistakes along the way, but through close collaboration with our patient partners, we have co-created a research project that is both relevant and sustainable.
In recognition of our efforts, MOBILIZE was nominated for the Patient-Centered Research Award at the 2025 celebration of Denmark’s Best Clinical Trials and Studies. Although we did not take home the award, we are proud to have been one of three finalists among 44 outstanding projects.
A part of the MOBILIZE team at the 2025 celebration of Denmark’s Best Clinical Trials and Studies. From left to right: Alessio Bricca, Elin Nielsen, Hanne Rasmussen, Mette Nyberg, Søren T Skou, Kaj Johansen.
